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Your medical care

When it comes to navigating the healthcare system and working with various medical professionals, keeping one’s medical information well-organized and easily accessible may often prove to be a daunting task.

To help you organize, track and catalogue your medical information successfully, we invite you to download the “Healthcare Management Binder web-icon-pdf“. 

Please note however that the material in the “Healthcare Management Binder” is presented for general information only. It is not intended to substitute for informed medical advice. The binder is a resource that should be used in conjunction with one’s healthcare provider(s).

We sincerely hope that this binder serves as an easy and efficient tool in managing your overall healthcare experience. 

To learn more about the most common complications of scleroderma, we encourage you to familiarize yourself with the warning signs that you and your loved ones should regularly be watching for. Please refer to the brochure  What is scleroderma web-icon-pdf?

 

How to prepare for your medical appointment 

To clearly articulate your condition to your doctor and avoid forgetting something important during your medical visit, here are some tips that will help you get answers to your questions. 

 

Before your visit

Write down all relevant information pertaining to your health and questions you want to ask.

  1. Make a list of observations that you have made ​​since your health problem started and describe them accurately:
    • Symptoms or discomforts experienced; (fatigue, pain, loss of appetite, insomnia, or any other change in my body…)
    • At what times do they appear? (morning, afternoon, evening, night, before/after meals, after exercise or effort, rest…)
    • For how long did you have these symptoms? (number of minutes, hours, days or months…)
    • How often do these symptoms occur? (at the same time of day, every day, every week, every month, irregular or permanent…)
    • What is their intensity? (light, moderate, unbearable…)
    • What means and/or drugs did I use to help reduce the discomfort and what results did I achieve? 

 

  1. Prepare your questions
    • To understand the disease and its potential complications;
    • To understand the reasons for prescribed tests, potential complications, results of analyses and medical examinations requested;
    • To know if different treatments are available as well as the benefits and disadvantages of each of them (drugs, surgery or others). Is the prescribed treatment the best to manage the disease? How long will it last? etc.;
    • To understand the treatment and medications recommended by my doctor or pharmacist, I need to know:
    • the name of the medication;
    • its usefulness and the expected effect;
    • how and when to take the medication and what to do if I you miss a dose;
    • the method of conservation;
    • the duration of treatment;
    • the potential adverse effects;
    • what to do if these effects occur;
    • its possible interactions with other drugs, foods, alcohol, natural products, etc.;
    • the risk of addiction.

 

I make a long enough appointment that provides the opportunity for a thorough and in-depth discussion with my doctor and I don’t forget to bring with me all my prescribed and over-the-counter medications.

Have a productive appointment…

Adapted from the information sheet: Questions à poser à mon médecin ou pharmacien lors de mon entrevue. Les Médicaments : Oui… Non… Mais! En Montérégie (Questions to ask my doctor or pharmacist during my interview. Drugs: Yes … No … But! In Montérégie, based on a paper by the Outaouais DSP (1989) and the book: Le p’tit guide des médicaments à l’usage des personnes de 50 ans et plus (A Short Guide to Medication for the 50 year-olds and over. G. Barbeau, C. Brunelle, Mr. Dugas, A. Roberge 1999).

Contact our nurse

Want more information on systemic sclerosis (aka scleroderma): forms, symptoms, causes, diagnosis, treatments, specialists, support groups? You or a loved one are newly diagnosed and have many questions about this disease?

Our nurse can help you prepare for your appointment with your medical specialist, help you better understand your test results and provide you with useful advice.

Do not hesitate to leave her a message and contact information in all confidentiality, and she will get back to you at the earliest opportunity.

Please note that this service is available to Quebec residents only.

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